Laughing at My Nightmare by Shane Burcaw
My rating: 5 of 5 stars
This book will stay in my mind for a long time. I want to thank Shane Burcaw for his unflinching honesty about painful and intimate parts of his life. I've read a number of memoirs/autobiographies, and I don't think I've seen this level of honesty before. He's willing to discuss his insecurities, his deepest fears, his shortcomings—and also his hopes, and the people he loves—all made fascinating through the lens of a debilitating disease that affects not only him, but also his family and friends.
I'm researching SMA for a series of science fiction books I'm writing. This memoir fulfilled my research needs and then some. I feel as if I have a much better understanding of what this disease is about and how it affects those who have it.
For another perspective on this neuromuscular disease, check out the awesome blog of Alyssa Silva.